Automating the Pull of Information from EHR's

The Social Security Administration announced they wanted to set up a project to test the concept of pulling information automatically form EHR's to help them deal with the 2.5 million disability claims it receives each year

Currently the process cost ~ $500 million a year to retrieve paper copies of records and then process them. The initial request asked vendors, health providers and payers to suggest a process and referred to a trial currently in process using the Continuity of Care Record (CCR). The framing by SSA as:

a fully automated Personal Health Records prototype system

is a little misleading and submissions can come from all areas. If these records are produced by dictation and transcription (and given the high proportion of information that currently is it is a fair bet that most is) then the opportunity here is for the value to the information by creating these documents in CDA format to be made available to SSA for those records to allow them to process the information automatically.

Information on the request can be found here

This project could be a great demonstration vehicle to show the value of moving all documents into a CDA format making the information instantly more useful and available for processing.

EMR Adoption and PHRs

Chilmark Research published a "PHR Market Report, Analysis and Trends" - the Executive Summary is available for free (with sharing of your details). In their blog commentary they make an relevant point

PHRs simply won’t go anywhere without data and arguably the best source of data is a physician EMR system. Unfortunately, the adoption of EMR is abysmal across the care continuum of providers sitting at somewhere around 15-20% depending on how you count it/who you believe.

And even if you believe the 15-20% penetration of this, the vast majority of the information in these systems comes from dictation and transcription and is stored as blobs of text. There is certainly some potential for the personal health records/systems to help drive the capture of more shareable data. There are problems of security and confidentiality but as they suggest I think the benefits will outweigh the risks in the near future, especially given the entry of Microsoft, Google, Intuit and Dossia (there is a piece of my British Heritage that feels this is not the best name choice - see here).

For both PHR's and EHR's to succeed the data has to be shareable.....easily. It has to be as easy as clicking on a link or plugging in a USB stick and selecting import. To see what this needs to look like you need look no further than Facebook which has rapid user adoption. Facebook has exploded onto the social networking scene by offering simple ways for sharing applications, data and tools between all the users.

The HL7 approved CDA format represents the way forward and the potential to bridge the divide between structured and unstructured content. CDA4CDT commenced the process in 2007 and has defined the formats for 4 document types so far and there are more to come. There are several presentations available here. With shareable formats data can be made available from PHRs to EHRs and vice versa. This will drive adoption in both systems.

Privacy of Information

There's a fun video posted to the ACLU web site - it is worth watching as it raises some legitimate issues on the privacy of information and the consequences of the sharing and linking of that information. You can watch the video here

What is interesting about this video is how close we are already to this reality. Many private companies can already link existing public sources of data to create an extensive and fairly detailed profile of individuals, their buying habits, preferences etc. You only have to visit your local Jiffy Lube to see how quickly they can pull up all the details on your car and based on this offer the best "treatments" for the "health" of your car! In this case best is probably as much about your car as it is for selling you additional services. In the case of you supermarket shopping card this tracks your purchases in excruciating detail and there have been many instances of this data being used against the individual. In this particular instance it turns out the data used while correct proved to be a red herring and in the words of Bruce Schneier:

The moral of this story is that even the most innocent database can be used against a person in a criminal investigation turning their lives completely upside down.

Clearly today we already see data usage beyond what might be expected, and many would say beyond reasonable limits. But at the same time I think most patients would agree that any visit to a medical office is an extremely frustrating experience. Such visits require patient's to hand write all their data onto a paper form. Data that already exists in many other systems and often in the very system that it is destined to be entered into.

So where is the balance - I believe unfortunately that as Lord Acton said:

Power tends to corrupt, and absolute power corrupts absolutely. Great men are almost always bad men

I also firmly believe that the sharing of information is essential to the delivery of high quality care. So while it is clear to me that ready access to the complete medical record is the most helpful to clinicians there has to be some limitations to accessibility.

So how do we balance the need to share relevant medical information with the concern that the sharing of that information could be used against you. The answer is unclear and the issue complex but several groups are working towards this goal, trying to balance the need for information with the need to protect everyone from the inevitable abuse that comes with total access and power.

Some of the EMR companies have a "Break the Glass" approach to urgent access - providing emergency access to anyone with a corresponding oversight in all cases where they felt the need to break the glass and access all the patient's data. The Voluntary Universal Healthcare Identifier (VUHID) group has taken a slightly different approach by creating a voluntary identifier which allows the individual to control and manage access to their clinical information on an ongoing basis:

.....to enable error-free linkage of clinical information,
enhance the privacy of patient information, improve the quality of
medical care, reduce the rate of medical errors, decrease the incidence of healthcare-related identity theft, and help control healthcare costs.

There are others solutions and ideas and no doubt there will be more added as the systems and ideas develop - whatever we end up with it is clear this is complex area and will require continued debate, careful consideration and ongoing participation by all parties from the vendor community, through government all the way to the individual to ensure we come out with a solution that everyone can live with

Only 14% of Doctors Using an EMR

The July 2008 For the Record newsletter contained an interesting article that reaffirms the lack of penetration of EMRs in healthcare today

Electronic health records seem so intuitive. Most of us assume our medical records are digitized to save time and help doctors track patients’ medical history. Americans would probably be surprised that a mere 14% of doctors in the United States use electronic medical records (EMRs)

In this particular instance the point is brought home in relation to the daughter of the Queens who was diagnosed with a rare condition DiGeorge syndrome that requires multiple visits and complex treatments. It is true that this example is at the higher end of complexity and requires many more medical interactions and participation but we will all experience some level of medical interaction that will certainly not be getting simpler or less detailed. Medicine continues to innovate at an ever increasing pace and customized drugs therapy and treatments and personalized medicine is within sight. So the problems this family faced which included

....when a procedure was delayed for more than fours hours, while doctors and nurses waited for Courtney’s lengthy file to arrive from another hospital floor. Finally, the records arrived when an aide brought the soaring stack of papers and manila folders on a wheelchair

Will be our problems now and in the future as well. We can look to other countries for their experiences and perhaps even be a little envious as the article cites:

• 90% of doctors in Sweden
• 60% in the United Kingdom

Although the United Kingdom's experiences is not without its own set of challenges and problems and there are those in the US that would question the value derived from such implementations, in general, clinicians and the health care community is agreed - we need to implement electronic medical records for everyone and allow this information to be shared. There is and will continue to be discussion and disagreement on what should be shared, who can see the information and even how it is shared but sharing medical knowledge effectively and efficiently is highly desirable.

Even the technology press is getting in on the commentary with an article from ComputerWorld that makes the point that much of the lack of success in rolling out these systems boils down to the old adage

"Follow the Money"

But the biggest obstacle may be a payment model that offers little financial incentive for most health care providers to invest in using electronic records internally, let alone share them with other providers.

And John Halmka, the CIO for Harvard Medical School and Beth Israel Deaconess Medical Center is quoted as saying

"The provider bears the cost, but most of the benefits accrue to other parties," mainly "payers" -- insurance companies -- and patients who reap the benefits of higher-quality care

So while we wait for the government agencies to fix the incentive problem we need to show value in the implementation and improve the working environment for our clinicians. Taking a leaf out of Apple's play book might help given the impressive (recent stock slides aside) of Apple in the Music Player business (one they were not even in until 2001) and the more recent iPhone. They do come with faults, contrary to the pleadings of your average teenager everyone does not need an iPhone and lining up for hours or even days to get the latest model is not typical behavior. But with their attention to detail and focus on ease of use and intuitiveness I have to believe that with that same level of attention to detail and actually designing a solution that physicians want to use we could accelerate adoption. I'd bet that an EMR designed to be accessed using an iPhone would be a lot more attractive and receive wider uptake and participation by clinicians than one designed using older technology.

And the market is large:

....there are 921,904 physicians, 723,118 practices and 5,756 hospitals in the U.S., according to the American Medical Association and the American Hospital Association.

But more importantly based on the US Census population clock there are around 304 Million customers and the numbers increasing....so perhaps the key driver as Grannis suggests will be Personal Health Records

....efforts by Microsoft Corp., Google Inc. and others to build personal health record repositories...... will put pressure on the industry to embrace EMRs

I know Courtney Queen and her parents are grateful for some level of EMR's in the "Vandy Zone" but I am willing to bet that everyone would benefit. 304 million people asking for electronic records and real sharing of their medical information rather than endlessly filling in the same information on paper forms has to carry some weight....